This is a bit of a different style of blog post, but I just wanted to share in my experience that I’ve been going through lately.
If you’ve read my “About me” you’ll know that I have health problems. I was diagnosed with Psoriatic Arthritis 6 years ago but I’ve had Psoriasis since I was about 13. Well obviously my life has changed a lot in the last 6 years and also a few years before that, but I wasn’t really aware I was ill, I just thought I was unlucky and poorly a lot, so things definitely made sense once I was diagnosed.
I’ve been living my life as best I can, attending hospital and Dr’s appointments, trying different meds to get to one that didn’t make me feel really poorly, that’s been fun(sarcasm). I’m currently on a drug called Leflunomide for my arthritis and up until this last year it has been making a difference, it’s unfortunate though that I haven’t been getting the care, help and support that I need from my NHS medical team. I am supposed to be seen every 6 months, a specialist Dr then 6 months from that a specialist nurse, it’s been nearly a year since I’ve seen any body. I won’t go in to details of how my time has gone with these specialist, but let’s say it’s not gone well and I’ve felt completely fobbed off and not taken care of, so much so that I was convinced by my husband to go and see a private specialist Dr. That is what I did, I had my first appointment with him on the 23 June.
It sounds extravagant that I’m going private, but to be honest it’s not costing as much as we thought it would, so we’ve managed to save for it. I can’t go 100% private as that would get expensive but to have a Dr whom over sees my condition is very helpful.
As I said I had my first consultation on the 23 June, a Saturday, and it could not have gone any better. The Dr that I chose is fantastic, he listened to what we had to say, he was sympathetic and understanding, I left his office feeling a lot happier than I ever have leaving my other appointments and feeling positive too.
During the consultation I explained how I’d been feeling a lot worse than normal over this last year or maybe even longer. I had mentioned this during the other appointments I’d had but nothing was done and I also got told, after saying that I had been getting a lot of colds and generally feeling very unwell, that some people just get ill. I also explained that I’d been suffering with really bad back pain that keeps me awake and effects my day-to-day life, again this just seemed to be ignored, up until now. My new specialist mentioned me having blood tests and x-rays to see what is going on with me as I hadn’t had any x-rays since I’d seen my first specialist 6 years ago. Fibromyalgia was mentioned as I was showing symptoms along with my arthritis.
I have now received a copy of the letter my new specialist has sent to my GP which outlines what had happened during my appointment. I have also been officially diagnosed as having Fibromyalgia and am to start on new medication and also increase my current arthritis medication too, as well as have blood tests and go for x-rays and go back to my new specialist in 3 months time to hopefully discuss the outcome of the x-rays and blood tests, so now I have to wait for my GP to get back to me to sort all of this out, I just hope that doesn’t take too long.
So all in all I feel like I am being taken seriously and getting listened too and hopefully with the new medication, things will begin to improve for me, I know I’ll never get better but I hope to have a better quality of life than I’ve had for the past few years, I’ll keep you updated on how things go.
Thank you for reading and until next time, take care of yourselves.